See a Doctor
who believes you

MastCellCon On Tour Coming to Raleigh in November 2026

by
David Harris
Updated:
September 2026

TMS MastCellCon On Tour will come to Raleigh, North Carolina, on November 13 and 14, 2026. Created by The Mast Cell Disease Society, the in-person event will bring patients, caregivers, family members, healthcare professionals, and advocates together for education and connection focused on mast cell diseases.

The Raleigh conference will take place at the Hilton Raleigh North Hills. Space is limited, and the organizers recommend registering early.

Register for TMS MastCellCon On Tour Raleigh.

Visit the official Raleigh conference website, view the Raleigh event program, or explore all upcoming TMS events and programs.

A patient-centered mast cell disease conference

The Mast Cell Disease Society describes MastCellCon On Tour as a smaller, more personal version of the education and community experience offered by MastCellCon. The program is designed to provide medically informative, practically useful sessions for people at different stages of living with a mast cell disease.

The Raleigh schedule begins Friday afternoon and continues through most of Saturday. Planned activities include plenary sessions, disease-specific breakout sessions, optional support groups, networking, community conversations, and an update on the TMS Patient Registry.

The two-city 2026 tour also includes an October event in Phoenix. TMS states that Phoenix and Raleigh will offer the same program, allowing attendees to select the location that works best for them.

Topics planned for MastCellCon On Tour

The developing program includes sessions intended to help patients and families understand mast cell conditions and participate more confidently in care. Announced breakout topics include:

  • Your MCAS Roadmap: From Diagnosis to Daily Management, covering mast cell activation, symptoms, mediators, diagnosis, and treatment options
  • The SM Landscape: Understanding Subtypes, Current Treatments, and New Directions, focused on systemic mastocytosis subtypes, treatment strategies, and emerging research
  • When Conditions Overlap: Navigating MCAS, POTS, and EDS, exploring the challenges that can arise when mast cell activation syndrome, postural orthostatic tachycardia syndrome, and Ehlers-Danlos syndrome overlap
  • Your SM Matters: Making Sure Every Doctor Understands the Bigger Picture, addressing communication, medical decisions that may affect mast cell activation, and coordinated care across the healthcare system

The organizer notes that portions of the agenda are still being finalized. Attendees should review the official Raleigh program for the latest schedule and speaker information.

Planned speakers for MastCellCon On Tour in Raleigh

The public speaker roster currently includes TMS leadership, clinicians, and patient-registry contributors:

  • Judith Emmel: Board Chair of The Mast Cell Disease Society; session details have not yet been announced
  • Anne L. Maitland, MD, PhD: “When Conditions Overlap: Navigating MCAS, POTS, and EDS”
  • Shonna Snyder, PhD: “Power in Participation: Introducing the Mast Cell Disease Patient Registry”
  • Amanda Crofoot: “Power in Participation: Introducing the Mast Cell Disease Patient Registry”

TMS says that it is still finalizing speaker details and that additional biographies are coming soon. Review the official Raleigh speakers page for the latest roster before attending.

Raleigh conference location and travel information

Event details

  • Dates: Friday, November 13 and Saturday, November 14, 2026
  • Venue: Hilton Raleigh North Hills
  • Address: 3415 Wake Forest Road, Raleigh, NC 27609
  • Format: In person
  • Audience: Patients, caregivers, family members, healthcare professionals, advocates, and industry attendees
  • Early-bird registration: $75 for patients and caregivers, $125 for healthcare providers and advocacy organizations, and $225 for industry partners

Conference attendees receive complimentary parking. Attendees staying at the Hilton should use the TMS hotel booking link provided with their registration confirmation. TMS explains that using its booking link provides access to the group rate and helps the hotel place attendees in rooms covered by the conference's safety accommodations.

Travel, hotel, meal, safety, cancellation, accessibility, and registration details may change. Please consult the conference website or contact TMS at info@tmsforacure.org before making plans if you have specific accommodation needs.

Register for TMS MastCellCon On Tour Raleigh

Registration is open, and space is limited. Current early-bird fees include all sessions, breakfast, lunch, and breaks on both days.

Register for TMS MastCellCon On Tour Raleigh, November 13-14, 2026.

For complete conference information, visit the official TMS MastCellCon On Tour Raleigh website. For other educational events, support programs, and community opportunities, visit the TMS events and programs calendar.

Mast cell disease care at The EDS Clinic in North Carolina

The EDS Clinic (www.eds.clinic) provides telehealth evaluation, diagnosis, and treatment for mast cell activation syndrome, Ehlers-Danlos Syndrome, postural orthostatic tachycardia syndrome, and related conditions. Because provider availability and state licensure can change, prospective patients should confirm current options when requesting an appointment.

Event details, speaker information, and early-bird registration fees are current as of September 10, 2026 and may be updated by The Mast Cell Disease Society. This article is for general information and does not provide medical advice or diagnosis.

See a Doctor
who believes you