Ehlers Danlos Syndrome Specialists in North Carolina

We offer evaluations for the diagnosis and treatment of Ehlers Danlos Syndrome with EDS specialists in North Carolina via telehealth

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“A godsend especially for my daughter who has POTS/EDS/MCAS.”

– K. M.

“The only doctors who have listened and worked SO HARD to not only save my life but ensure that I’m thriving. I could never pay it back in a million years.”

– S. N.

“I feel (for the first time ever) that we have found a truly empathetic and kind patient advocate”

– E. P.

Our Mission

We are deeply committed to improving acess to EDS diagnosis and treatment for all members of our community. Ten years ago, Professor Rodney Grahame, remarked that “no other disease in the history of modern medicine has been neglected in such a way as Ehlers-Danlos syndrome.” Since then, EDS awareness has dramatically increased, but access to care still lags behind. It takes decades to change the practice of medicine, and we aren't willing to wait that long. That's why we are building a virtual center of excellence to provide care for EDS patients across the United States. We aren't big enough to provide accessible care for everybody today, but we are building towards a future in which every EDS patient can access quality care that is covered by insurance.

See a Doctor
who believes you

Meet our Ehlers-Danlos Experts in North Carolina

We are actively building our team in your state, but we aren't quite ready yet.